Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Surprises’

Five For Friday 10/11/13

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 3 Days of Home Rehab.
  • I saw Larry in the office on Tuesday. Usually I see him once a month for his “magic hands” OMM and to make sure everything with my health is being managed like it should be. However, Larry has been in Belgium and the Netherlands for the last month as the team doctor for the US (at gymnastics worlds), so it had been two months since my last appointment. And boy, how I have missed him. We had a great appointment going over everything I’ve been up to (start of school, PT, prolotherapy, doctor changes, etc). He did a lot of jaw and cranial work on me as we talked, also acting as my shrink at times; talking about pacing, priorities, and life in general. That man wears many hats in my life.  The best way to explain how I feel after seeing him is it feels easy to breathe again with peace and clarity. I am so blessed he is my doctor and my friend. I have no idea where I would be without him.

Five For Friday 9/13/13

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 3 Days of Home Rehab/Strengthening/Lifting.  This is a huge improvement over last week.
  • I saw my OMM doctor on Thursday.  I had a fever which is weird because I wasn’t feeling terrible.  It was also one of those appointments when the nurse took my blood pressure, stopped, looked at me with concern and said, “I’m not sure how you are still talking to me with a blood pressure this low.” That was my cue to down some soy sauce and lie down.  Once, I saw the doctor, she worked from my pelvis to my neck.  Let me just say that for someone so hypermobile, it’s pretty crazy how stuck my OA joints (neck) get.

Five For Friday 9/6/13

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of Home Rehab.  I really failed this week at finding the energy or the time to rehab. This obviously has to change.
  • No PT. My “break” is almost over.
  • No doctor’s appointments.
  • I spent Labor Day going to Urgent Care not once, but twice, for an infected toe from a pedicure. Long story.
  • Insomnia. Sigh. You all know it’s my fave (insert sarcasm here). I have to keep reminding myself that, “this too shall pass.”

Five For Friday 7/19/13

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • 1 Day of PT ~ mostly OMM.  I was struggling. A sign I need to slow down a bit.
  • 2 Days of Home Rehab.
  • 1 OMM appointment: cranial-sacral therapy.
  • My POTS is definitely not appreciating this heat wave.  It can cool down any time now.  

Five For Friday 5/3/13

Written by Katie. Posted in Five For Friday

Happy May…which means Happy Ehlers-Danlos and Vasculitis Awareness Months!

1.  Medical Stuff:

  • I traveled to Toledo, OH on Monday to see one of my POTS specialists, Dr. Bev.  More about that soon.
  • I traveled to Mishawaka, IN on Thursday for prolotherapy injections. More to come on that too.
  • 3 Days of Home Rehab.